Scientific findings on the cause, diagnosis, therapy and prevention of diseases like cancer are rapidly increasing these days. New insights arising from basic research – especially molecular biology and genetics – and clinical trials combined with the advances in information technology provide the medical and scientific community with the opportunity to develop better and more individualized treatments with less side effects.
Clinical trials are essential to achieve better treatments for patients. Scenarios and structures that help to run more clinical trials and to bridge the gap between treatment given to patients today and research to find better treatment for patients is of utmost importance. In consequence, the p-medicine project proposes to create an infrastructure that will facilitate the development from current medical practice to personalized medicine.
Patients are typically seen as the recipients of care. An important ideal of personalized medicine is to better enable patients to be participants and guides in their own health care. Patient empowerment is based on information coming from research. p-medicine will provide this information to increase the knowledge of patients about their disease. We want to give patients a more active role in managing their disease by strengthening their role in general and making shared decision support possible by providing transparency in data handling, augmentation of the patients’ knowledge about their disease and participation as an active partner in a shared decision process.
Why is p-medicine interesting for patients? p-medicine aims to…
- Facilitate enrolment of more patients in clinical trials which offer the best possible therapy and prognosis
- Give patients a more active role in trials (patient empowerment)
- Serve as an information platform for patients